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Peritoneal Dialysis and Your Lifestyle

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African American couple looking at a magazine with a pd cycler in the background

 

The PD Option

Peritoneal dialysis, or “PD,” is one way to replace some of the function of kidneys that don’t work. It is a gentle treatment and is easy to learn and do by yourself at home. Good hygiene is very important for PD success.

You don’t need a partner to do PD. Assist devices can help you to do PD if you don’t see or hear well, or can only use one hand. If you have had major surgery to your belly, PD may not work for you.

animation of manual PD exchange using a catheter

 

Needle-free Treatment Using Your Own Body

Peritoneal dialysis uses your peritoneum as a filter for your blood. A PD catheter—a soft, plastic tube about as thick as a drinking straw, but longer—is placed in your belly by a doctor. A nurse will teach you how to use this tube to fill your belly with sterile fluid.

PD goes on all the time. Wastes and water in your blood flow out of the blood vessels in your peritoneum and into the fluid in your belly. After a few hours, you drain out the used fluid and put fresh fluid in. Draining out used fluid and putting in fresh fluid is called an “exchange.” Each exchange takes about 20 minutes. The rest of the time when you are not doing an exchange, you are free to do other things.

PD cycler machine

 

Manual or Automated Exchanges

PD exchanges can be done a few times a day, by hand. Or, people can use a machine called a cycler at night while they sleep. The cycler does the exchanges for you. If you are a larger person, you may need one daytime exchange, too.

nurse on phone

 

Training for PD

PD is quick to learn—it takes a week or two to learn how to do PD. A nurse will visit your home to help you get ready. Each step of the exchange must be done with great care, JUST as you are taught, to avoid infection inside the belly (called peritonitis). You won’t start PD at home until you and your nurse are both confident that you can succeed.

Once you go home with PD, a nurse is on call 24/7 if you have questions. PD fluid has sugar in it, so you may need to limit starchy foods to avoid weight gain. If you have diabetes, you may be able to add regular insulin to the PD bags.

two equal weighted balls balanced on a bar

 

Keeping Your Body in Balance

The job of healthy kidneys is to keep substances in your blood in balance. The closer to balance a treatment for kidney failure brings you, the better you may feel. When you feel better, you can do more of what matters to you.

red blood cells in the blood stream

 

Continuous Treatment with Fewer Ups & Downs

Dialysis removes water and wastes from your blood. PD is a way to do dialysis every day. It’s a continuous treatment that helps keep your blood in balance all the time. There are no ups and downs in how people feel from one day to the next on PD.

Man reading to boy

 

PD and Your Lifestyle

Now that you understand the basics of how PD works, let’s look at how it might affect your life in the areas of:

  • What you can eat and drink
  • How many medications you might need to take each day
  • How much control you would have over your time
  • How work-friendly PD is
  • How travel-friendly PD is
  • How PD may affect your sex life and ability to carry or father children
grilled chicken and vegetables on a skewer

 

PD and What You Eat

When you do PD, you may need to make some changes to what you can eat and drink. Most people who do PD need to eat more protein, because a little bit of protein is lost each time you drain out the used PD fluid. To learn more about protein in your diet, visit the Nutrition Room.

Since PD fluid has sugar in it, you can gain weight if you don’t limit starchy foods.

Your dietitian will go over your lab test results with you each month. If your levels of potassium or phosphorus are too high, you may need to limit foods that have these minerals.

pill box

 

PD and Medications

If you choose PD, you will need to take some medicines each day. Most people on PD need at least some phosphate binders. You may need to take blood pressure pills. You may also need EPO to treat anemia. To learn more about anemia treatment, visit the Pharmacy.

If you have diabetes or other health problems, you will still need to take prescribed medicines for them, though the dose may change if your kidneys stop working.

alarm clock

 

PD and Your Schedule

A treatment for kidney failure that you can do at home, like PD, gives you more control of your schedule. You DO have to fit in all of your exchanges each day to get enough treatment. But, you can shift the time a bit when you need to.

co-workers in a meeting room

 

PD and Your Job

Do you want to be able to work? A work-friendly treatment:

  • Is not scheduled during the work day—or can be done at work
  • Does not cause symptoms that might make you miss work
  • Reduces the chance that you might need to go to the hospital—and miss work
  • Helps you to have enough energy to work

PD is work-friendly for all of these reasons. Most people use a cycler to do PD at night, but a daytime exchange can be done in a clean room at work. Since PD is gentle and continuous, it does not tend to cause symptoms that bother you. It is vital to do all of your exchange steps as you are taught to avoid infection. Most people who do PD do not need to be in the hospital often.

street signs pointed in various directions

 

PD and Travel

When you do PD, you can bring your treatment with you when you travel. A cycler can go in a car, on a cruise, or on an airplane. With advance notice, the companies that make PD supplies will ship them to you in the continental U.S. If you want to travel outside of the U.S., talk to your VA care team to learn how.

family photo

 

PD, Fertility, and Your Sex Life

People who choose PD report a bit less erectile dysfunction and fewer other sexual problems than those who do standard in-center hemodialysis. Women of childbearing age who do PD tend to have a hard time getting pregnant, but some have. To carry a child to term, more dialysis may be needed than the standard PD prescription.

stacked storage boxes

 

What You Need to Do PD

You don’t need to live in a castle to do PD. People who live in small apartments or mobile homes have done PD. You do need space to store about 40 cubic feet of supplies. The supply company will bring new boxes once or twice a month. They will unload the boxes and put them where you want them—even upstairs. The first batch of supplies will be the biggest to be sure you have all that you need—later ones won’t be quite as big.

If you are homeless, there is a National VA call center to help you: 1-877-4AID-VET (1-877-424-3838).

You don’t need to have a partner at home to do PD.

Multiple or complex abdominal surgeries can prevent PD success. But, a c-section, hernia repair, or prior transplant should not be a problem if you want to do PD. Talk with your care team if you want to do PD but don’t know if you can.

swimmers in a pool

 

PD Limits

If you like baths and not showers, PD may not be a good fit for you. Getting your PD catheter wet could cause an infection. So, if you like to swim for exercise, PD may not be the best treatment for you. Talk to your care team about whether you can swim and how to care for your catheter if you get it wet.