Multiple Sclerosis Centers of Excellence
Resources for Caregivers and Partners of Veterans with Multiple Sclerosis
VA, Veteran/Military, and Government Organizations
Disabled American Veterans: Caregiver
Since 2010, DAV has fought to ensure family caregivers of all severely injured and ill Veterans are eligible for the same comprehensive caregiver support and services. DAV is working to ensure the eligibility expansion and all other provisions in the VA MISSION Act related to the VA’s Caregiver Support Program are enacted, and they continue to advocate for the program to be effective and efficient in assisting severely injured Veterans’ family caregivers.
Eldercare Locator
A nationwide service that connects older Americans and their caregivers with trustworthy local support resources. Whether help is needed with services such as meals, home care or transportation, or a caregiver needs training and education or a well-deserved break from caregiving responsibilities, the Eldercare Locator is there to point that person in the right direction.
Elizabeth Dole Foundation
Strengthening and empowering America’s military caregivers and their families by raising public awareness, driving research, championing policy, and leading collaborations that make a significant impact on their lives.
National Resource Directory
A searchable database of resources vetted for Service members, Veterans, family members, and caregivers.
Paralyzed Veterans of America: Caregiver Support
Since 1946, PVA has been on a mission to change lives and build brighter futures for our seriously injured heroes. They’ve had a single-minded mission—to empower our brave men and women to regain what they fought for: their freedom and independence.
Psych/Armor
Offers critical resources to Americans so they can effectively engage with and support military service members, Veterans, and their families. Because fewer than 7% of Americans serve or have served in uniform, most civilians are unfamiliar with military culture. As a result, members of the military and Veteran community often feel misunderstood and reluctant to seek support. Their mission is to bridge that civilian-military gap by educating a nation.
US Department of Health and Human Services
Oversees programs and services that improve the well-being of individuals, families, and communities. Provides guidance to build bridges with caregiver organizations.
VA Caregiver Support
Contains a wealth of resources for caregivers/partners, including self-care and caring for your Veteran. Caregiver Support Line: 1-855-260-3274.
- Caregiver Support Program Teams (helps caregivers find support)
- Connecting with Others
- Peer Support Mentoring Program
- Program of General Caregiver Support Services
- Program of Comprehensive Assistance for Family Caregivers
- Publications and Resources by Topic
- Tips and Tools
VA Coaching Into Care
Coaching Into Care is a national telephone service of the VA which aims to educate, support, and empower family members and friends who are seeking care or services for a Veteran. Their goal is to help Veterans, their family members, and other loved ones find the appropriate services at their local VA facilities and/or in their community.
VA Geriatrics and Extended Care
Has worksheets and handouts for caregivers/partners and Veterans on shared decision-making, well-being and advance care planning, home and community based services, residential settings, and nursing homes.
- Advanced Care Planning
- Home and Community Based Services
- Homemakers and Home Health Aides
- Respite Care
- Your Guide to Long Term Care Services and Supports
VA National Center for PTSD
The mission of the National Center for PTSD is to advance the clinical care and social welfare of America's Veterans and others who have experienced trauma, or who suffer from PTSD, through research, education, and training in the science, diagnosis, and treatment of PTSD and stress-related disorders.
VA Office of Rural Health: Resources
As the VA's lead advocate for rural health, ORH is working to improve the health and well-being of rural Veterans by increasing their access to care and services. Several videos have been created on health care decision making and caregiving.
Non-VA Organizations
Caregiver Action Network
The nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
CareGiving.com
Features the blogs of family caregivers, weekly words of comfort, daily chats, podcasts, and free webinars. Through its blog posts, podcasts, and video chats, CareGiving.com holds one of the largest online libraries of caregiving stories.
Caring Today
Serving the family caregiver community by offering valuable advice, researching the industry, and recommending the professional resources and advice to help ensure caregivers live a life that’s their own, one that’s balanced, connected, and most importantly with greater health and well-being. Everyone associated with Caring Today is currently or has been a family caregiver.
Family Caregiver Alliance: National Center on Caregiving
For 40 years, they have supported and sustained the important work of families and friends nationwide who care for adult loved ones with chronic, disabling health conditions.
MS Foundation: Homecare Assistance Grant Program
Understands the daily needs and challenges that must be met by both those with MS and their caregivers. In order to meet these needs in the most timely and efficient way possible, their Homecare Assistance Grant connects people to the best available local services. Should resources within the community not be available, direct support may be provided on a temporary basis.
National Alliance for Caregiving
In advancing their mission, NAC conducts research, does policy analysis, develops national best-practice programs, and works to increase public awareness of family caregiving issues. They recognize that family caregivers provide important societal and financial contributions toward maintaining the well-being of those in their care. In addition to national research and advocacy, NAC provides technical assistance to a national network of caregiving coalitions.
National Caregiving Foundation
Meets both the direct and indirect needs resulting from the impact of catastrophic diseases on our society. This is accomplished by providing important Veteran, suicide, and long-term care information, as well as distributing support materials.
National MS Society: Carepartners
Supports MS research, services for people with MS, and furthers worldwide MS advocacy efforts. They house the most comprehensive library of MS information in the world.
Powerful Tools for Caregivers
Provides classes to help caregivers take better care of themselves while caring for a friend or relative. There are over 4,600 trained Class Leaders teaching a class at different locations around the United States, as well as in Canada and Korea. The curriculum is available in English, French, Korean, and Spanish.
Rosalynn Carter Institute for Caregiving
Establishes local, state, national, and international partnerships committed to building quality, long-term, home and community-based services. This begins with providing caregivers with effective supports to promote caregiver health, skills, and resilience. They believe strongly in the need to provide greater recognition for professional and family caregivers.
Today's Caregiver
A leading provider of information, support, and guidance for family and professional caregivers. They produce Today's Caregiver magazine, the first national magazine dedicated to caregivers, Caregiving books, custom publications, and the Fearless Caregiver Conferences.
Well Spouse Association
Advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner. They offer peer to peer support and educate health care professionals and the general public about the special challenges and unique issues "well" spouses face every day.
Disclaimer: Links are provided as a convenience and for informational purposes only. They do not constitute an endorsement or an approval by MSCoE of any of the products, services, or opinions of the organization. MSCoE bears no responsibility for the accuracy, legality, or content of the external site or for that of subsequent links. Contact the external site for answers to questions regarding its content.
